Some of you have heard already, but we once again ended up in the er this weekend. early saturday morning rowan started gagging on his bottle and binky and eventually refused to eat altogether. He then started throwing up. we were really concerned because that was not like him at all. He loves his milk, so we knew something wasn't right. So we called the surgeons office and spoke to her partner, dr. fiore. He called dr. kogut and they discussed the issue and thought maybe there was some blockage in his intestine and said to take him to the er and that they'd inform them we were coming. So once there they did a test where they have him drink something and them take pictures so they can follow it's progress. I was able to convince him to drink some, and once it got to the stomach it stopped. They waited an hour and only a tiny amount was making any progress. So we discovered that his stoma is now completely out of his body and it is pulling some ligaments so tight that anything he takes in orally can't get through so he eventually throws it up. dr. kogut said that this has forced get hand and we will now have to do the surgery much sooner. She was hoping we could make it another two weeks, but we have all realized we won't make it that far. We see waiting to take him back to the hospital until I have had a chance to speak directly to dr. kogut to see what her plan is and when she thinks the surgery well happen. Rowan is in a lot of pain so we'd like to get him some medication but being in the pediatric unit is worse then being a3 home since the nurses wake him up every hour. He has a hard enough time sleeping without crying out in pain so we want to wait as long as possible to take him there. We appreciate all your prayers for him, and will let you know how the surgery goes.
Tranylle